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Five-year-old Sophia Chiappalone “married” her best friend, Hunter. (Photo: Sassy Mouth Photo)
A
5-year-old girl born with a hole in her heart — which has led to two
open-heart surgeries — “married” her best friend in a touching ceremony
she requested before her third procedure.
Sophia
Elyssa Chiappalone was born in Meriden, Conn., with a slew of
complications — her umbilical cord had fused into the placenta, and she
did not form an anus until she was outside the womb, an event “doctors
had never seen,” according to her mom, Kristy Somerset-Chiappalone.
At
the newborn intensive care unit, doctors discovered that Sophia had
both a hole in her heart and a genetic heart defect called tetralogy of Fallot with pulmonary atresia, a complicated condition that involves four distinct heart problems.
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Sophie on her “wedding” day (Photo: Sassy Mouth Photo)
“Sophia
is on the more severe side of the scale, and, although a good candidate
for a complete repair, it will take several surgeries throughout her
life,” explains Somerset-Chiappalone, a single mother of three, on a
Facebook page, Sophia Elyssa Chiappalone the beautiful baby with a broken heart.
Three or four of these open heart surgeries are likely to take place in
her first year of life. “I asked if this would end up shortening her
lifespan and the answer was yes. This is something no parent wants to
hear.”
After
spending two weeks in the hospital and undergoing a lifesaving
procedure that involved inserting a catheter into Sophia’s heart,
doctors sent the girl home. However, a few weeks later, at a routine
pediatrician check-up, Sophia turned blue and began losing oxygen. In
surgery, doctors connected her surrounding arteries with a conduit, and a
year later, she underwent a follow-up surgery.
View photos
Sophi and Hunter (Photo: Sassy Mouth Photo)
Sophia
is due for more surgery in January, and in case it’s not a success, she
decided to marry her best friend, Hunter, whom she met in preschool
when she was 3 years old. So on Oct. 23, with Sophia wearing a
pint-sized gown and veil from Bliss Bridal, the besties exchanged “vows”
at a local playground.
“Hunter’s mom is my best friend and asked me to do the shoot, because Sophia had a wish to marry Hunter,” Marisa Balletti-Lavoie of Sassy Mouth Photo, tells Yahoo Lifestyle. “It was my pleasure.”
On Oct. 25, Somerset-Chiappalone, who did not return Yahoo Lifestyle’s request for comment, created a Go Fund Me page to raise money for “Supergirl’s” jaw-dropping medical expenses. So far, she’s raised more than $5,000 of her $10,000 goal.
“I cannot help but be overwhelmed by the love and support we’ve gotten with Sophia and her recent wish,” Somerset-Chiappalone wrote on Facebook.
“It was pure innocence in the purest form. My heart aches with joy with
the people standing behind Supergirl on this fight. She’s fought to be
alive since her first breath, but that’s all she knows.”
The
mom added: “I love the idea of sharing the beautiful story that is her
and Hunter. Most people wait a lifetime for someone who wouldn’t stand
by them through such illness. She met a best friend and love of her life
at 3 who does. You know they say marry your best friend. It just
doesn’t usually happen before 1st grade…”
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